Data linkage publications

Aneurysmal subarachnoid haemorrhages in Tasmania: a Retrospective Cohort Study

2018 Socioeconomic Disadvantage Is Associated with a Higher Incidence of Aneurysmal Subarachnoid Hemorrhage

Australian Longitudinal Study on Women's Health (ALSWH) Data Linkage Project

2024 Female Reproductive Histories and the Risk of Chronic Obstructive Pulmonary Disease
2023 Fertility treatment pathways and births for women with and without PCOS – a retrospective population linked data study
2023 Data-driven lifestyle patterns and risk of dementia in older Australian women
2023 Ethnic differences in the association between age at natural menopause and risk of type 2 diabetes mellitus among postmenopausal women: a pooled analysis of individual data from 13 cohort studies
2023 Associations between endometriosis and common symptoms: Findings from the Australian Longitudinal Study on Women’s Health
2023 Do health assessments effect time to permanent residential aged care admission for older women with and without dementia
2023 Impact of endometriosis on women's health-related quality of life: A national prospective cohort study
2023 Patterns of contraceptive use through later reproductive years: A cohort study of Australian women with chronic disease
2023 Symptom patterns and health service use of women in early adulthood : a latent class analysis from the Australian Longitudinal Study on Women’s Health
2022 Infertility, recurrent pregnancy loss and risk of stroke: a pooled analysis of individual patient data of 618,532 women
2022 Menopausal hormone therapy and melanoma risk in the Australian longitudinal study on women's health
2022 Patterns of contraceptive use among young Australian women with chronic disease: findings from a prospective cohort study
2022 Accuracy of death certifications of diabetes, dementia and cancer in Australia: a population-based cohort study
2022 Longitudinal changes in employment following a diagnosis of endometriosis: Findings from an Australian cohort study
2022 Body mass index and the diagnosis of endometriosis: Findings from a national data linkage cohort study
2021 Delayed diagnosis of endometriosis disadvantages women in ART: a retrospective population linked data study
2021 The association between birth weight and proxy-reported health-related quality of life among children aged 5 − 10 years old: A linked data analysis
2021 Increased chronic disease prevalence among the younger generation: Findings from a population-based data linkage study to inform chronic disease ascertainment among reproductive-aged Australian women
2021 The association between the five-minute Apgar score and neurodevelopmental outcomes among children aged 8−66 months
2021 Determinants of neonatal near miss in Australia: A multilevel analysis
2020 Prevalence and incidence of endometriosis in Australian women: a data linkage cohort study

Birthplace in Australia: A population-based data linkage study

2019 Maternal and perinatal outcomes by planned place of birth in Australia 2000 – 2012: a linked population data study
2019 Creating the first national linked dataset on perinatal and maternal outcomes in Australia: Methods and challenges

Chronic Kidney Disease in Tasmania using data linkage

2024 Island medicine longitudinal cohort study: Rapid rise in chronic kidney disease in rural and remote communities
2023 The kidney failure risk equation predicts kidney failure: Validation in an Australian cohort
2021 Competing risks of death and kidney failure in a cohort of Australian adults with severe chronic kidney disease
2021 Island medicine: using data linkage to establish the kidney health of the population of Tasmania, Australia.
2020 Chronic kidney disease in Tasmania: Protocol for a Data Linkage Study

Cohort study of COVID-19 outbreak amongst health workers in North West Tasmania

2023 Serology study of healthcare workers following a hospital-based outbreak of COVID-19 in North West Tasmania, Australia, 2020

Coordination of Health Care (CHC) Study

2019 Measuring Health Loss in Australia: the Australian Burden of Disease Study

Effect of ongoing feedback on physical activity levels following an exercise intervention

2017 The effect of ongoing feedback on physical activity levels following an exercise intervention in older adults: a randomised controlled trial protocol

EXERTION: the EXERcise stress Test collaboratION - Tasmanian Pilot Study

2022 Type 2 diabetes and the clinical importance of exaggerated exercise blood pressure

Exposure to passive smoke in Tasmanian children: determinants, outcomes and changes over time (C2C Sub Project)

2021 Maternal Smoking During Pregnancy: Trends and Determinants in the Conception to Community Study
2021 Maternal Smoking in Pregnancy and Child's Hospital Use up to 5 years of age in a Data Linkage Birth Cohort

Factors that impede early access to defibrillation following out of hospital cardiac arrest

2020 Retrospective observational cohort study of out-of-hospital cardiac arrest outcomes in Tasmania 2010-2014

Living with Acute Coronary Syndrome

2013 Acute coronary syndrome care across Australia and New Zealand: the SNAPSHOT ACS study

Making it Count: Establishment of the Conception to Community Public Services Database

2021 The Tasmanian Conception to Community (C2C) Study Database 2008-09 to 2013-14: using linked health administrative data to address each piece in the puzzle

Observing Recurrent Incidence of Adverse Outcomes following Hospitalisations (ORION)

2022 Long-Term Survival, Stroke Recurrence, and Life Expectancy after an Acute Stroke in Australia and New Zealand from 2008-2017: A Population-Wide Cohort Study
2022 Thirty-Day Unplanned Readmissions Following Hospitalisation for Atrial Fibrillation in Australia and New Zealand
2022 Ten-year trends in mortality and complications following catheter ablation of atrial fibrillation
2021 Long term survival after acute myocardial infarction in Australia and New Zealand, 2009‒2015: a population cohort study
2021 Gender differences in complications following catheter ablation of atrial fibrillation
2021 Long-term outcomes following endovascular and surgical revascularization for peripheral artery disease: a propensity score-matched analysis
2020 Frequency, Trends and Institutional Variation in 30-Day All-Cause Mortality and Unplanned Readmissions Following Hospitalization for Heart Failure in Australia and New Zealand.
2019 Complications of cardiac implantable electronic device placement in public and private hospitals
2019 Institutional Variation in Quality of Cardiovascular Implantable Electronic Device Implantation: A Cohort Study.
2019 Sex Differences in Acute Complications of Cardiac Implantable Electronic Devices: Implications for Patient Safety

Pancreatitis in Tasmania: Quantifying the epidemiological and economic burden of disease

2024 The epidemiology of acute pancreatitis in Tasmania over a 12-year period: Is this a disease of disadvantage?

Pathways to better health and education outcomes for Tasmania's children - Cohort 1 and 2

2021 Use of administrative record linkage to examine patterns of universal early childhood health and education service use from birth to Kindergarten (age four years) and developmental vulnerability in the Preparatory Year (age five years) in Tasmania, Australia
2021 Universal child health and early education service use from birth through Kindergarten and developmental vulnerability in the Preparatory Year (age 5 years) in Tasmania, Australia
2020 How outreach facilitates family engagement with universal early childhood health and education services in Tasmania, Australia: An ethnographic study
2020 Associations between clusters of early life risk factors and developmental vulnerability at age 5: a retrospective cohort study using population-wide linkage of administrative data in Tasmania, Australia

Perioperative Risk Assessment and Modification in Patients on Renal Replacement Therapy (RRT)

2023 Postoperative outcomes after gastrointestinal surgery in patients receiving chronic kidney replacement therapy: a population-based cohort study
2022 Trends in Rates of Surgery and Postoperative Mortality Among Patients Receiving Chronic Kidney Replacement Therapy
A Population-based Cohort Study
2022 Evaluating data quality in the Australian and New Zealand dialysis and transplant registry using administrative hospital admission datasets and data linkage
2020 Identifying new-onset conditions and pre-existing conditions using lookback periods in Australian health administrative datasets
2019 Long-term outcomes of patients with end-stage kidney disease due to membranous nephropathy: A cohort study using the Australia and New Zealand Dialysis and Transplant Registry
2019 Perioperative outcomes and risk assessment in dialysis patients: current knowledge and future directions
2019 Health data linkage research in Australia remains challenging

Population level chlamydia testing and positivity rates in Tasmania

2017 Testing for chlamydial infection: are we meeting clinical guidelines? Evidence from a state-level laboratory data linkage analysis for 15- to 29-year-olds
2017 Chlamydia retesting and retest positivity rates: results from a state-wide laboratory data linkage study in Tasmania, 2012–13
2016 Geographical differences in Chlamydia trachomatis testing in 15-29 year-olds in Tasmania: Findings from a statewide laboratory data linkage study

QUIET-IPF Study: Quality of lIfE and costs associaTed with Idiopathic Pulmonary Fibrosis

2022 The economic burden of idiopathic pulmonary fibrosis in Australia: a cost of illness study

Recent trends, risk factors and disparities in low birthweight and macrosomia in Tasmania, 2005-2018: A retrospective cohort study

REDDISH: REDucing Delays In aneurysmal Subarachnoid Haemorrhage

2022 Association of Onset-to-Treatment Time with Discharge Destination, Mortality, and Complications among Patients with Aneurysmal Subarachnoid Hemorrhage
2021 Adherence to evidence-based processes of care reduces one-year mortality after aneurysmal subarachnoid hemorrhage (aSAH)

Reducing the burdEn of LIver cANcer for Tasmanians (RELIANT)

2022 Accuracy of coded cause of death data: a study based on primary liver cancer
2019 Increasing incidence and mortality related to liver cancer in Australia: time to turn the tide

SAFety, Effectiveness of care and Resource use among Australian Hospitals (SAFER Hospitals)

2020 SAFety, Effectiveness of care and Resource use among Australian Hospitals (SAFER Hospitals): a protocol for a population-wide cohort study of outcomes of hospital care

Systemic Sclerosis

2021 Cost-Effectiveness of Combination Therapy for Patients With Systemic Sclerosis–Related Pulmonary Arterial Hypertension
2021 The clinical and economic burden of systemic sclerosis related interstitial lung disease.
2019 Digital ulcers in systemic sclerosis: their epidemiology, clinical characteristics, and associated clinical and economic burden
2019 The economic burden of systemic sclerosis related pulmonary arterial hypertension in Australia.
2019 Incidence, risk factors and outcomes of cancer in systemic sclerosis.
2018 Determinants of health-related quality of life in a multinational systemic sclerosis inception cohort.

Tasmanian Thyroid Monitoring Program

2021 Longitudinal population-based study of progression rates for borderline thyroid-stimulating hormone abnormalities
2017 Temporal trends in thyroid-stimulating hormone (TSH) and thyroid peroxidase antibody (ATPO) testing across two phases of iodine fortification in Tasmania (1995-2013).

The burden and cost of injury attributable health care use and mortality in Australia

2020 Fracture-related hospitalisations and readmissions of Australian children ≤16 years: A 10-year population-based cohort study
2019 Excess Mortality Among Adults Hospitalized With Traumatic Brain Injury in Australia
2018 Hospital readmissions in paediatric trauma patients: A 10 year Australian review
2018 Socioeconomic variation in injury hospitalisations in Australian children <16 years: a  10 year population-based cohort study
2018 A 10-year review of child injury hospitalisations, health outcomes and treatment costs in Australia
2018 Hospitalised burns in children up to 16 years old: A 10-year population-based study in Australia.
2018 Incidence, costs, and temporal trends of sports injury-related hospitalisations in Australian children over a 10-year period: A nationwide population-based cohort study
2018 Incidence and severity of head injury hospitalisations in Australian children over a 10‐year period
2018 Intentional self‐harm and assault hospitalisations and treatment cost of children in Australia over a 10‐year period
2017 Self-harm hospitalised morbidity and mortality risk using a matched population-based cohort design
2014 Data linkage for injury surveillance and research in Australia: perils. Pitfalls and potential.

The D-Health Trial: Data Linkage

2023 The Effect of Vitamin D Supplementation on Hypothyroidism in the Randomized Controlled D-Health Trial
2023 Vitamin D supplementation and major cardiovascular events: D-Health randomised controlled trial
2023 The effect of monthly vitamin D supplementation on fractures: a tertiary outcome from the population-based, double-blind, randomised, placebo-controlled D-Health trial
2022 Vitamin D supplementation and hospitalization for infection in older adults: A post-hoc analysis of data from the Australian D-Health Trial
2022 The effect of vitamin D supplementation on risk of keratinocyte cancer: an exploratory analysis of the D‐Health randomized controlled trial
2022 Vitamin D Supplementation and the Incidence of Cataract Surgery in Older Australian Adults
2022 The D-Health Trial: a randomised controlled trial of the effect of vitamin D on mortality
2019 A randomized placebo-controlled trial of vitamin D supplementation for reduction of mortality and cancer: Statistical analysis plan for the D-Health Trial.

The Epidemiology of Keratinocyte Carcinomas in Tasmania over 40 years

2022 Risk of subsequent keratinocyte carcinomas after a first diagnosis in Tasmania, Australia
2021 Temporal trends in the incidence rates of keratinocyte carcinomas from 1978 to 2018 in Tasmania, Australia: a population‑based study

The Epidemiology of Multiple Primary Cancers in Tasmania

2018 Temporal trends in competing mortality from second and subsequent primary cancers, 1980–2014: An Australian population-based study
2018 Temporal trends in the risk of second primary cancers among survivors of adult-onset cancers, 1980 through 2013: An Australian population-based study: Trends in the Risk of Second Cancers

Using data linkage to estimate the burden of diabetes in Tasmania

2024 Creating an interactive map visualising the geographic variations of the burden of diabetes to inform policymaking: An example from a cohort study in Tasmania, Australia
2023 Risk of hospital admission or emergency department presentation due to diabetes complications: a retrospective cohort study in Tasmania, Australia
2022 Costs of major complications in people with and without diabetes in Tasmania, Australia
2022 A Comprehensive Systematic Review of Data Linkage Publications on Diabetes in Australia
2022 Incremental healthcare expenditure attributable to diabetes mellitus: a cost of illness study in Tasmania, Australia

What perinatal risk factors are associated with impaired lung function in children at the age of 6 to 8 years

2019 Prevalence of asthma and allergic disorders in regional, rural, and indigenous children aged 6–8 years in Tasmania